Nick Reynolds

Help #SavePurnell!

One of our awesome clients is going through something not so awesome recently, and we’d like to lend a helping hand, through the power of blogging and social media share their message. Help us help Taylor & Sam #SavePurnell by sharing this post! Thanks in advance! 

-Nick

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From Taylor, Sam & Purnell:

Recently our 1-year-old son Purnell was diagnosed with a rare and fatal genetic disease, called Niemann-Pick Type A (NPA). It's uniformly fatal by the age of 3, and causes severe cognitive decline (like a baby Alzheimer's) typically beginning at age 15-18 months. This Friday Purnell turns 14 months. There is currently no treatment available.

BUT there is a promising gene therapy treatment within reach--it just needs funding. So my husband and I began a campaign <www.gofundme.com> that has gained the attention of local, national, and even international media. To date, we have raised over $500K (including offline donations), but we are racing the clock to reach our goal of $750K by June 30. 

All money raised goes directly to the Wylder Nation Foundation, <www.wyldernation.org> the 501c3 non-profit that is funding the gene therapy research. The money we raise goes toward saving not only our son Purnell, but to making treatment available to all babies afflicted with this terrible disease.

From Friday June 23 to Friday June 30, we are launching a massive final push #7days1goal to get to our goal of $750,000 by June 30. There are a TON of ways to help #SavePurnell during these 7 days, and not all of them require money!! :)

SOCIAL MEDIA:

  • Facebook Live 14-month Birthday Party 
    • This is our official #7days1goal launch event.
    • The sad truth is we don't know if we will get another birthday with Nell, so we are celebrating every month like it's the big day.
    • Please join us on the Save Purnell Today Facebook page <www.facebook.com/SavePurnellToday> on Friday, June 23 at 4:30pm EST to celebrate Purnell's 14-month birthday with us, live from our living room.
    • Share the event with your network.
  • Six Second Hug Challenge
    • Similar to the ice bucket challenge, we're hoping to go viral with videos of people hugging for 6 seconds. Tag 6 friends to post their own six-second hug video or donate $25 to #SavePurnell.
    • There is no treatment for Niemann-Pick Type A. The goal of this challenge is to raise awareness of the disease and our efforts to make a treatment available for Purnell and all other babies with this disease.

LOCAL EVENTS:

  • Saturday, 6/24: Middlesex Lounge (315 Massachusetts Ave, Cambridge, MA)
    • Food and drink for purchase; drink proceeds go to #SavePurnell
    • 50/50 raffle
    • 6pm-9pm
  • Monday, 6/26: West on Centre (1732 Centre St, West Roxbury, MA)
    • Neighborhood Nights--10% of all bills with attached coupon will go to #SavePurnell
    • 11am-11pm
  • Wednesday 6/28: Not Your Average Joe's (111 Pond St, Norwell, MA)
    • Not Your Average Cause--just mention #SavePurnell and 15% of the bill will be donated
    • 11:30am-10pm
  • Thursday 6/29: Wild Rover (61-63 Chatham St, Boston, MA)
    • Free apps, dj, some raffle items including Red Sox/Yankees tix, 50/50 raffle
    • 6pm-9pm
  • Friday 6/30: Blarney Stone (1505 Dorchester Ave, Dorchester, MA) 
    • Final event of the campaign.
    • Free apps, dj, raffle items, silent auction with BINcA students artwork, 50/50 raffle
    • 5pm-8pm

ONLINE SHOPPING:

We are so grateful for the support of the Boston community and beyond. We BELIEVE together we will #SavePurnell!

With Hope Always,

Sam, Taylor, and Purnell

Enjoy Convenient Urban Living at the Fenway Diamond Apartments

The Fenway Diamond Apartments offer a clean, spacious, and luxurious living environment in a convenient urban setting.  The building is located near the Longwood Medical Area as well as many of the top colleges and universities in Boston.  Other nearby attractions include Kenmore Square, Fenway Park, Landsdowne Street, and numerous entertainment and nightlife options.  Several cafes and restaurants within the neighborhood give residents the chance to mingle with their friends and neighbors in a relaxed setting.

While there is much to do in the neighborhood surrounding Fenway Diamond Apartments, the indoor amenities and activities are impressive as well.  Some of these include:

•  Washing machine and dryer in each unit
•  Recessed lighting in living areas
•  Free heat and hot water
•  Large customized closet space in master bedroom
•  Secure onsite fitness center
•  Underground parking
•  Dogs and cats welcome
•  Entire building is smoke-free
•  Ability to pay rent online
•  Maintenance requests performed within 24-hours

Floor plans at this deluxe Boston apartment complex range from 494-foot studios to extra-large two-bedroom suites.  A one-bedroom unit with an open floor plan (approximately 775 square feet in size), starts at $3,325 per month.  A regular two-bedroom apartment between 890 and 935 square feet rents for approximately $4,295 a month, and the largest two-bedroom units of 1,018 ft2 are priced between $4,310 and $4,695.  With easy access to the MBTA, living at the Fenway Diamond Apartments couldn’t be more convenient.

Interested in Fenway Diamond Apartments?  Contact us today!  info@longwoodresidential.com  •  617.396.3100

Interested in Fenway Diamond Apartments?  Contact us today!  info@longwoodresidential.com  •  617.396.3100

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